I would summarise my top tips for campaigning as the three P’s; persistence, politeness, proof.
Persistence - the most important quality. Never give up.
Politeness - don’t give people an excuse to ignore you, which they may do if you are aggressive or rude.
Proof - always put your communications in writing and keep copies. Members of staff leave over time, but you will always be there with the evidence.
I have been fighting battles for my son James since he was born 19 years ago. Those battles take place on all fronts, because he has multiple disabilities. But the health service is the one I now find the most difficult to deal with.
One of the biggest challenges we face is to ensure that James has a working wheelchair. He is taller than me and weighs 80kg. Without a wheelchair he is virtually stranded in bed. He has a powered chair which he drives himself and that chair is both his legs and his voice. If he is feeling overwhelmed in a crowded room he can just drive out of the door.
He does give the chair quite a bashing; he bites lumps out of the head rest, and when he is excited, bucks in his seat like a rodeo cowboy. However, it’s not his fault and he does not deserve to wait for weeks for the chair to be repaired when it stops working, which used to be often.
I have written a blog about this https://www.mencap.org.uk/blog/activism-week-2018-top-tips-dealing-nhs