Can you remember where you first got support?

[SarahL]

It can be very tricky to get the right support at diagnosis (or even before that).

We’d love to hear about your experiences of getting support early on. This could be support from your GP, school, work, hospital, charity, or friends and family.

What do you wish you’d known then? What do you think other people in a similar situation should know?

Here are a few questions that might be you started:

• When did you first get offered help?
• What were you offered? And were you ready to take up the offer?
• Did you ask for help? If so, who did you ask?
• Did you know what sort of help you needed/was available?
• Where did the most useful support come from?
• Did you have any contact with other people in the same boat as you?

Thank you for sharing
Sarah

[SarahL]

[Maggie-home]

Hi

My GP was (and still is) amazing. She really helped me in the early days and she gave me time to accept what was going on.

I also couldn’t have managed without my best friend. She didn’t have any prior experience of LD (like me) but she has been great at learning about it all with me. She is great at just listening. She continues to give me time to let off steam and just be me (rather than a parent).

Other people have been less helpful - particularly in the early days when I was really struggling. So many appointments. So much jargon. So confusing.

[Maggie-home]

Oh - and of course my sister again. She is brilliant.