Hi I’m new to this hub so I have been posting all over the place! Sorry!
I am a single parent, my daughter age 35 is blind with learning difficulties and autistic traits. She is happy living with me for now but I am not getting any younger and realise we need to plan for the future. I would appreciate any advice from parents who,like me, are beginning to get their heads around this idea! Or who have recently successfully found a community house for their son/daughter.
Thank you for posting your question on FamilyHub!
I put it to our Facebook followers who have written some really in-depth replies. Take a look here.
I hope there are some helpful suggestions in there
All the best,
Thanks Sian but I am not on Facebook so unfortunately cannot see replies
Oh sorry Pollyanna!
If you click this link you should be able to see the replies without needing an account. Let me know if you don’t have any luck, though, and I will copy and paste for you
Been there, done that! The major problem with group homes in Australia (not all) is"mindercare" rather than “quality of life care”. The four group home support components are, “Administration”, “Domestic”, Personal Care" and “Quality of Life Care (interaction, (engagement and skill development)”. QOL is always last, or not there at all!. Take a look at, www.lisainc.com.au
Tony & Heather Tregale, Melbourne, Australia
Hi pollyanna my name is pauline I have a 35 year old son with learning difficulties we have just started the process of supported living .It is definately going to be a long haul as he hasnt even had respite before.We started by talking to his keyworker at the day centre he attends.we then tried to get a social worker which took nearly 2 years.We were awarded direct payments and I found a lady to give him respite.Luckily he knew her as she runs his social club.he goes to her two or three times a month but just for tea as hes not ready to stay overnight.We know its going to take an awful long time but hopefully we will get there .The secret is to be persistent as there will always be someone more in need I was on the phone every day to social service until they got sick of me and gave me what I wanted .please get in touch if you want any help
Hi Pauline, my daughter has never attended a day centre or had respite…up until now we have always found activities, places to go together. I have phoned Social services and they have said we will get an appointment in the next 3/4weeks. To be honest I am a single parent and don’t know anyone else who is going through this process…it is not just the practical side of things …I feel really anxious but realise in the long run we have to start looking at this option. I need to find out if there is a scheme in our Borough where Lissa could spend some time with a family.
It would be good to keep in touch and I appreciate any advice you can give me along the way. Thanks for getting in touch. By the way my name is Jane.
My advice is to contact your local council to find the nearest day centre and demand that your daughter has some help it makes all the difference to thier lives Ian has a great social life through the day centre and his keyworker is invaluable to us .Also we run a carers support group at the day centre which keeps all of the mothers connected which is great if we have any problems. you really have to make yourself a nuisance with social care dont take no for an answer keep phoning every week until you get what you want.I ve even threatened them with getting the papers involved.Shes your child but you have to have help.and keeping on at them is the only way.pauline
Thanks for the advice Pauline… I will check out what the provision is, as my daughter is totally blind I don’t know if they have anything suitable but I will check it out again.
Welcome to FamilyHub. We're all here because we care about learning disability. Some of us will have questions, and most of us will have stories to share.
Take a look around, have a nosey, start a conversation. This is your community.