Hi @WorriedParent, I don’t have anything to add on the court of protection information as other people have covered this. But I just wanted to echo how scary it is planning for the future!! I feel this too, when thinking about the future of my brother who has severe learning disabilities.
If you haven’t already come across this guide from the Foundation of People with Learning Disabilities you might find it helpful. It’s called ‘Thinking Ahead’ and it breaks down all the different parts of planning for the future (housing, finances, deputyship… etc) that can feel really overwhelming. Hope it helps, here’s the link https://www.mentalhealth.org.uk/learning-disabilities/our-work/family-friends-community/thinking-ahead
Best wishes and hope you have some support nearby for yourself during this stressful time. Take care, Frances