Gosh! This overrun cost is shocking! … We have just learned the meaning of DLA (PIP) and ESA, We are learning the UK system slowly.
Here in SE Australia, our youngest (40) is in a similar situation since we reluctantly decided we we getting no younger to provide 24/7 care. But he is with us as often as possible.
He is in an active-night group home and attends a day service 5 days per week, 6 hrs per day. With transport provided free by the group home
All support services are full paid, at present by the state government, but soon by Federal. And, he gets a full disability support pension, as do all people with disabilities.
We are happy to supply the figures in UK pounds if anyone is interesting in comparisons
Tony & Heather Tregale