I would like to speak with someone who has a similar situation.
My daughter is 2 years old, she is not able to walk, speak, concentrate, communicate yet… all genetic test is normal. I can see a progression, but not massive. I am feeling that she needs more support.
I would like to know if there is any different support we can get but not just NHS? Rehabilitation? Does anyone has any feetbacks about Portland hospital in London?
Many thanks for any help xxx
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