My son is 29 with Autism. He still lives at home with us. We need to start thinking about when we can no longer care for him or no longer around. We can never see him leaving the family home as he is so happy here, does not like change and very set in his ways. A move would set him back and destroy all our good work we have done to help him cope with everyday life.
Hi @Conchetina we also have this worry. Our daughter is 21 and we don’t know what the future holds for her when we are gone. Sorry I don’t have any answers but I wanted you to know that I understand your worries about this.
I also worry about this as my son is 23 this year and unable to look after himself. He only has me and my husband. However he has been used to going off to respite since the age of 3, so he does cope with change.
It doesn’t make it any easier though.
I talk about with other parents on a facebook group for parents of adult children, it has been very helpful.
Hi @MazzyM, can you share the name of the group on Facebook please or message me with it. Many thanks.
Hi Im Pauline my son Ian is 34 and we are having a simlar problem Ian is exactly the same doesnt want to leave us but we know there will come a time when we arent here and we cant expect his brother to look after him (as much as he wants to) we have just set in motion some respite care .He will start off having tea at the carers home and eventually stay overnight.It could take months or it could take years but we know we have to do it for his sake.I understand where youre coming from because you just want to keep him safe and I always think that other people dont love him like we do. please let me know if we can help each other through this traumatic time
Parents of adults with any additional needs (facebook ‘private’ group for parents only)
Thanks @MazzyM, I have sent a request to join
could you let me know your full name so that when I see it I can add you
Hi @MazzyM, its hubby’s FB I use and I’m not sure about putting his name on here. Sorry.
OK. Well if you do get your own facebook account, you would be very welcome to join.
Thanks will do. I have cancelled the request from hubby’s FB.
Hi - I just wanted to add that discretionary trusts can provide financial security after parents have passed away. Trust law is powerful and not just for the very rich.
Discretionary trust law is powerful. It helps protect vulnerable loved ones. Find out more here www.mencap.org.uk/mencaptrustcompany
And/or you can call us on 020 7696 6932 to talk it through.
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