Hi all - I am lost and confused

[gryffen]

Hi all, Im Gayle, mama of Eilidh and Zachary!

Our daughter has a diagnosis of Global Developmental Delay and i am so lost about what i need to do next? We have just had her Enhanced Transition meeting this aftenoon as her school and nursery are connected and are amazing and have settled a lot of worries we had.

Now, apart from giving her and her school all the support we have and more is there anything else we could be doing that we arent?

I’ve already had questions about who should be paid the ‘disabled fund’ (PIL) and ive shut them up about that as im highly doubting she would be granted anything (no idea about that process?)

Needing some support as her dad and i are lost.

sorry if im in the wrong area - wanted to say hello and this!

[frances_is_a_sibling]

Welcome to the family hub @gryffen It sounds like things have been a bit overwhelming lately. There is so much to do, and you just want to make sure you’re giving your daughter the best start in life - you just want her to have all the support she needs. It’s great to hear that her school and nursery have been amazing and settled a lot of your worries. What has your GP said? Have they given you any further advice?

[gryffen]

Hi Frances - we haven’t had any contact with our GP regarding this - are we meant to?

Only SLT gave us the diagnosis and no other information (which probably explains why we are so lost and confused!)

Do we need to let the GP know or will they get the SLT report and call us in?

Our nursery is brilliant and school has lots of experience so they have our full support.

[frances_is_a_sibling]

Oh I see, I thought it might have been the GP that gave the diagnosis. You could always give the GP a call to ask if they have any further advice or know of other local services you may benefit from? Can you go back to the SLT and ask them what the next steps should be? It feels odd that they gave the diagnosis but offered no further steps on that?? Really glad to hear you have the support of the nursery and school.

Are there parents on the forum who have had similar recent experiences to @gryffen?

[charlie1]

Hi gryffen
My son was diagnosed with GDD by the Community Children Physician but he had a bad start and that was 32 years ago.I am a bit vague about who gave the diagnosis ,however as time goes on you will need to apply early for benefits to help.PIP will be first and mostly your daughter will need to not be doing the things that children of her own age are doing.Probably ask for various reports,to go with PIP paperwork when you are ready to apply.I don’t know how old you need to be when applying but probably not until she starts school which I think you said she has.Ring up and get paperwork or look on the internet if you can.Looking deep at internet you can get sample answers and the assessors rules about how points are awarded.Its a long road but join a support group such as local Mencap.Keep ahead of all the benefits that you are entitled to because they are not means tested so it does not matter how much money you have coming in you can get PIP.Extra money is good because you might end up doing more washing or different but easier to put on shoes and clothing.I think you can get childrens shoes exempt from VAT and specialised equipment will be VAT exempt but you will always need to ask.Unfortunately there is no single person that will tell you when and where to apply but teachers and social workers are a good resource.Good luck