How many people with Down’s also have autistic tendencies?

[Chrispy]

Hi, I’m just curious as to how many people with Down’s also have Autistic tendencies. My son does and I had an awful time trying to get the assessment for him. Now that this aspect of my son is recognised professionals finally understood that he wasn’t being stubborn, he just needs a different approach and better communication from them. It has made so much difference to his life and he is no longer aggressive as the frustration has been reduced, he no longer hides up my jumper when people he doesn’t know well are around, he has regained his communication skills and has had a speaking and signing part on stage and he has gained city and guilds qualification. It took 3 years to get someone to listen and has taken a further 5 years to undo the damage caused by professionals denying this part of his makeup and I don’t want others to go through this. I work in a day centre and know my son is not the only person diagnosed with Downs who has this further difficulty. Why do so called professionals deny that it is possible for a person to have more than one need. Every time social services renew his assessment for funding I still have to fight to get the autistic tendencies included in spite of a specialist doctor’s report. Just had to do it yet again so am worn out and annoted. thanks if you read this

[Chrispy]

sorry that should read annoyed not annoted

[Siobhan]

You have had a really hard time of it. But you are such a fighter. My daughter had a nine year struggle to get into an autistic care home. The journey is just beginning for us. How old is your son. Mine is nineteen now and I am hoping she goes on to do well. I hope that you continue on well both of you.