Hi there Claudia,
Thank you for sharing. I appreciate you’ve had a difficult time getting a diagnosis for Jameel and you still want to find the best way to support him. I’m one of the Mencap information and advice officers and I have some general information which you may find useful.
Of course the best option is to work with the school as much as possible so that they are aware of the difficulties he faces. I wonder if Jameel has any extra help in school or if you think this would be useful for him. You could talk to his teacher or the school special educational needs co-ordinator (SENCO) about ways to make the transition easier for him.
If you think Jameel needs a more formal arrangement for support you might want to think about an education, health and care plan (EHCP) for him. You can ask for an assessment to see if he is eligible. The advantage of EHC plans is that they offer a more holistic approach covering health and social care needs for someone in an educational setting. They now extend from 0 to 25 years for anyone who is in education. EHC plans are necessary when the school cannot support the pupil through the usual special educational needs co-ordinator (SENCO) channels.
Your local authority will have an independent information, advice and support service to families, children and young people with special educational needs and disabilities (SENDIASS). They will be able to tell you about EHC assessments and talk things through with you. You can find details of your local SENDIASS on this link: https://councilfordisabledchildren.org.uk/information-advice-and-support-services-network
Ambitious about Autism is a support organisation for young people who have autism: https://www.ambitiousaboutautism.org.uk/ They have support hubs for young people and for parents. They also ran a ‘know your normal’ campaign earlier this year which aims to remind people that everyone’s normal is different and that those quirks and idiosyncrasies that everyone has are what makes them who they are, with or without with autism.
There is a video and toolkit here: https://www.ambitiousaboutautism.org.uk/know-your-normal
I hope that’s useful.