Hi. Sure, here is what I wrote:
"In January 2016 Chris Heaton Harris raised a very pertinent PQ: “to ask the Secretary of State for Health, for what reasons the age at which the death of people with learning disabilities is classified as premature has been set at 60 in the draft NHS outcomes”
Around this time I also wrote to my MP - then Dominic Raab - various other MPs and the Department of Health, and was told by Alastair Burt that it would be looked at again.
In the February 2018 release, link in email trail below, rather than being brought into line, learning disability just isn’t there anymore. Not good given the last release admitted (and almost entrenched in policy) that they were a group who die prematurely.
As you will see in the email trail below I emailed to check I hadn’t missed anything and was told they were included under the indicator 1.5 umbrella of mental health problems. This is rather like grouping the diabetics with the cancer sufferers.
These are very different groups with different challenges worthy of individual attention.
I wonder if you could raise this with the DH?
I will in the interim raise this with Mr Heaton Harris, my own MP, the disability APPG and direct with the DH.
With thanks for your time and the very best wishes"
I already got a reply from the APPG saying they will see what they can do, which is positive.
Here is a link to the indicators and to the one I was pointed to
Thanks and also for sharing your blog, I will read now