My brother lives in a flat within a home which cares for individuals with learning disabilities. He has had a waking night entitlement since he was five years old. When he transitioned into adult care it was decided that his waking night entitlement should be removed (without informing us). Now he is left unsupported all night (he has the mental age equivalent of 2) and we are terrified for his safety. He is completely non-verbal and relies on the presence of a support worker to interpret his needs or if he feels unwell etc. It is an on going battle with the local authority and they refuse the budge, saying that he does not need a waking night as there is no evidence to suggest so. They are too concerned about the expense of a waking night in Relation to the public purses. He has also recently developed epilepsy - we thought this would garuntee a waking night but apparently not.
Is anyone in a similar situation or can give us any advice? We are have applied for Welfare and Financial Deputyship.
I’m sorry to hear of the problems you are experiencing with your brothers overnight care.
I too have a brother with severe learning disabilities. He presently lives in a residential care home though we are in the processing of moving him as we are dissatisfied with his current service.
I am unable to offer any advice on your issue but are you aware of Mencap’s petition
You can find more information at the following link:
I hope you find a solution to this issue soon.
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