Siblings experiences of the future care planning process - research!

[Bron-R]

Hello,

I’m Bronwen! I’m a trainee clinical psychologist, currently conducting some research as part of my doctoral thesis. More importantly however, I’m a sibling to someone with learning disabilities, an experience which has ultimately inspired the topic for my research.

The research is looking to interview siblings (aged 18 or above) of individuals with learning disabilities, specifically focusing on their views and experiences of the future care planning process - how this is talked about/planned within families etc

As a sibling myself, I’m aware that siblings sometimes struggle to get their voices heard and I therefore believe that this research could be really valuable.

As with all research studies, there are various inclusion/exclusion criteria - unfortunately at present, I’m not able to recruit siblings of individuals with autism spectrum disorders. However, should I open up the research in the future, I will re-post again!

If anyone is at all interested, please feel free to email me and I can send you some further information/have more of a chat about it/discuss eligibility etc.

br300@exeter.ac.uk

I hope this has been ok for me to post here!

Thank you!!

[frances_is_a_sibling]

Hi @Bron-R, Welcome to the forum and thank you for taking the time to research the experiences of siblings. I’m a sibling too - my brother has severe learning disabilities - and future planning is a topic many siblings worry about.

If you haven’t already, you could also post on the Choice Forum - https://our.choiceforum.org/

And there is a facebook group for siblings called ‘SibNet’. It is mostly American siblings, but many from the UK too and across the globe.

Hope this helps and let us know how your research goes - I’d be really interested to read the results.

Best wishes
Frances

[Bron-R]

Hi @frances_is_a_sibling,

Thank you for your message and for the additional suggestions regarding advertising - really appreciated

Absolutely, I will let you know how I get on with it all!

Warmest wishes,

Bron

[frances_is_a_sibling]

No problem @Bron-R look forward to hearing about it