Hi there Richmondos,
I agree, the transition from childrens to adults services can be quite confusing especially if your daughter has quite complex needs. I’m one of the Mencap information and advice officers and we often hear from parents who are going through this transition.
Most people over 18 who get care and support will get social care support. This is arranged for by the local authority or council, but sometimes people have to pay for some or all of their care. This type of support helps people with their day to day lives and supports them to have a good quality of life. People who get social care might need some support with their health.
Some people may need care and support because they have a health need. This means the care and support they need is mostly to stop them from getting very sick or to manage a medical condition. NHS continuing health care (CHC) is for people who have health needs that are so serious that the council support services can’t manage them without support from the NHS. When people get full CHC funding they don’t have to pay anything for their support. It is all paid for by the NHS. The money for CHC is given out by the area Clinical Commissioning Group (CCG).
In some cases a person may have joint funding between social services and the NHS, and it’s important to be clear about which part of a person’s care and support falls under each of these. When your daughter has her assessment you could ask who will be involved and why.
I hope that helps. If you need any in-depth information or advice do call Mencap Direct on 0808 808 1111.